Olive is our beautiful daughter who was born with a Giant Congenital Melanocytic Nevus.
Thursday 19 June 2014
Wow! The response I have had from my last post is astonishing! My Facebook inbox was going non-stop with messages from people (in particular, mother's) sharing their experiences which were very similar to my own. I was so hesitant about posting it, for fear of people knowing my 'secrets' but I am so glad I did. Depression and anxiety can be such a taboo subject and it is really hard to talk about to people who haven't been through it.
Though it is sad how many DO experience these, it is also quite comforting knowing you AREN'T crazy, you AREN'T alone. People DO understand. And by golly, they are supportive! There are no rules on how to deal with it - everyone is different and what works for one may be to the detriment of another person.
I am infinitely grateful to those for supporting me with the way *I* have/am dealt/dealing with it.
I'd like to share another blog today. This beautiful young Mum, Aseel, joined the Nevus Family last year in March, when her son Abdalla was born with CMN covering a lot of his back and neck. Aseel is originally from Iraq and her husband and her moved to Sweden for a chance at a better life. You can only imagine how hard this hit her - not only dealing with a new baby who was different and who had the doctors baffled, but add to this living in a foreign country with no family and support system.
I, among others, were so worried for Aseel in those early days. Her posts were so sad and I just wanted to wrap my arms around her, hug her and tell her everything would be OK. It is hard coming from little old New Zealand, to understand the gravity of devastation in her home country. To understand why she couldn't just go home, or why her family couldn't just come and support her. I actually feel naïve even writing that, but alas it is true. I have never experienced any of the things that Aseel has, and so though I tried, I just couldn't grasp the concept of just how hard things were for her.
I am so proud of my friend-who-I've-never-met. She has come such a long long way and proven to herself how incredibly strong and courageous she is. She managed to pull herself out of the hole she was in and appreciate and marvel in her special Abdalla. Have a read of her blog here to get a glimpse into her life. She is truly one of the most amazing and inspiring people I have ever had the pleasure of 'meeting' (I don't see a real-life meet happening anytime soon, but hey - perhaps one day!).
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