Strike!

Last night we held our bowlathon to help with the rest of our fundraising towards *Olive's Chance*.
Miss Olive stayed home with Pop, as it was too late a night for her. She was a bit out of sorts when she woke a while after she'd gone to bed (read screaming :-\) but Pop quickly settled her on the couch with him, until we came home.

Everyone had a great night, especially my big kids who spent the night winning tickets to cash in for prizes! They got thoroughly spoilt by friends and family shouting them games and treats and Jax said he had "100% fun" lol.

We had a great turn out, with 16 bowlers all up. People put a lot of time and effort into committing to the event and getting sponsors. I want to thank each and every one of you who came and supported us. You have no idea how much we appreciate everyone's support and dedication to our cause. Thank you all, so so much.

I'd like to also thank some of the companies for their donations of the products we used as prizes. Volt for some amazing coffee; Teza for some of their delicious iced tea; Smashbox for $300 worth of their beautiful make up; Mexico for a $100 voucher at their awesome restaurant; Tank for vouchers for yummy healthy juice/smoothies; Kiwi Valley for a family pass; Spookers for a double pass and to PINS on Lincoln Road for hosting our bowlathon - the service was fantastic. Thank you all very much.

We managed to raise over $1500 (unsure of final count until sponsor sheets come in) but that is a LOT more than we thought! The support is just so overwhelming. We couldn't have got here without each and every one of you. So thank you all.

We have just one last event coming up on the 28th June. We are having a karaoke night where you can pay just $10 (all proceeds go directly to our cause) and come along for a great night of terrible singing (that's just me, not sure about you! haha) and be in to win some wonderful prizes and raffles. You can email me for more details if you are interested!

For now, I will leave you with this pic of my beautiful babies, who all of this is for. xx

As with a lot of online groups, there is a great mix of people in some of our nevus support groups. People from all different countries, all walks of life, with contrasting attitudes, different upbringings, diverse outlooks on life. We all parent different to one another and we all have individual personalities. So it probably doesn't come as a surprise to tell you that sometimes there can be big disagreements on some of those forums. The most common argument is removal versus non-removal. As you can imagine, this is an incredibly difficult decision for any parent to make. First you are given a baby who isn't as we expected (and ALL babies are different! We all know they don't come with a handbook!), and you have to deal with that in itself. Then, most people are given the option of choosing to either leave the nevus and monitor it, or to use a removal process - generally either using skin expanders (implanting an expander under the 'good' skin, expanding it over time then taking the expander out, removing nevus skin and replacing with the new skin), curettage (scraping of the skin), laser, or sometimes grafts.

None of these are an easy option. Every option we choose comes with it's negatives and positives. I don't think any parent makes the decision lightly, and I believe we are each making what we consider to be the best choice for our child. As I said at the start of this post, we are all different. I think we make our choices based on many factors - our country where we live and our society, our support system, our doctor's recommendations, our beliefs, our own confidence and fears, where on the body the nevus is and the size of it, and our doctor's reactions when our babies are born, amongst other things.

We are all different people (sorry, there's that word again! :P) and need to respect each other accordingly. Our nevus community is so small in this huge world and it always saddens me to see others arguing over the 'best choice' - there IS no best choice. There is no clear cut of what to do. Sometimes I am still unsure if we made the right choice by not pursuing removal processes more with the doctors. One day Olive might tell me she wishes we had removed it when she was younger, or she may wish to go down that route as she gets older. For now, as her parents, we are just doing the best we can....I hope others can see that, and to also recognise it in all the other parents who have been placed on this similar path.

On a brighter note, is that because of Olive, I have met a whole new world of people, most of whom are just amazing. They are inspirational and positive and have provided me with so much support and information and smiles over the last two years. Thank you, my 'nevus family'!!

And another bright note, we have hit our fundraising goal!! Thanks to the wonderful generosity of friends, family, and members of the public (all with beautiful hearts!) we are so stoked to announce WE'RE GOING TO ADELAIDE BABY!!

The kids are super excited and we have concreted the milestone by paying the deposit on our accommodation. Can. Not. Wait.

We have a few fundraising events coming up to try to raise the rest of the funds necessary - a bowlathon in May and a karaoke night in June. If anyone is keen on either of these, please get in touch with me through here.

Donations are still going, even though the target has been met (target was for the basics - flights, accommodation and passports) so if anybody still wants to donate, you can do so here:
https://www.givealittle.co.nz/cause/oliveschance

This ANZAC weekend , I organised our first ever New Zealand group meet-up in Rotorua, and wow - what an experience. So many wonderful people with so much knowledge and experience to share. We managed to get together 8 New Zealand families - as well as having the pleasure of the director of Nevus Support Australia, Michelle's company for the weekend.

I can't begin to tell you what it meant for us to speak face to face with other parents who have children with the same condition as our Olive, and to talk with those who are older and further along their path. I'm sure others can relate when I say there is something special in being able to talk with others in the same boat - whether it be rare condition like Olive has, or a heart defect, or another type of medical 'ailment', To be able to meet a bunch of beautiful people of various ages who have had such a similar road to the one you are on is both relaxing and overwhelming all at once.

Olive was the youngest person with CMN there, and the others ranged in ages up to 47. For me as a Mum, I found it really reassuring to see these brave and beautiful girls and women (there were no males with CMN there!) leading such a wonderful, fulfilling and normal life. Each one of them was an inspiration for me, and I feel they will be such a positive influence and great role models for Olive in years to come. There was such a delight in watching all the kids playing together so comfortably and getting along so well.

I got to learn about a whole bunch of medical procedures I had no idea about, and to learn of what the others did and didn't like about living with their nevus. I will admit, that for someone who is shy like myself, the whole aspect of meeting new people was a bit scary and I was quite anxious beforehand. But I needn't have been. They were such easy-going people and going by the feedback I have received, they each found it just as beneficial as us. I am so thankful that each family was so receptive to being open and honest with us all, just as we were with them, and that everyone was so interested in each other!

What a blessing to meet this many families in such a short span of Olive's life. Olive of course, was oblivious to most of it. She was more intent on running out of the pub door on Saturday night and screaming her way down the slide at the park we met at on Sunday. We got some gorgeous photos of everybody all together, and all of the kids had a blast.

In what can appear to be a 'negative' when your child is first born with such a distinctive difference, sometimes you can meet some of the most amazing people.

Here is my wee girl with her 'same same' friend, Haley, who also has a bathing trunk nevus.

They say it take a village to raise children and though a lot of the time I feel like I'm all alone in this long haul, and no-one else could at all understand my sleep deprivation or how close I am teetering to the end of my tether, I actually have to agree wholeheartedly. I could never be without my village. With each stage of the kids lives, my village grows a bit more and involves more people - friends, teachers, new family. My village is something I value a lot and I lean on them heavily with my parenting -  it may be a phonecall to my Mum to tell her a funny thing one of the kids said, or a post on Facebook asking what other parents do in such and such situation, or perhaps even my Dad or my sister taking the kids overnight so we can have some time as a couple. Whatever the situation though, I am always aware that these are my 'guys'. And I have some damn good ones.

Today my youngest babe turns two. Two whole years since my little angel graced us with her presence. And she hasn't stopped. I had as many Facebook posts on my wall today wishing my little girl a happy birthday as I did on my birthday! And nobody even got a Facebook reminder! Haha. But honestly? That makes me feel blessed. It is not just me and my husband who love this child (and of course my other two!) infinitely, but our whole village. It inspires me to keep sharing things about my kids and to keep filling them with love.

I wont deny it, my kids do my head in. I lose it and yell, and go all banshee on them. I don't necessarily do things right - hell, a lot of the time I feel like I'm stumbling my way through this minefield of a parenting lark! Sometimes I feel I am too hard on them and other times I think I'm probably taking the easy way out. But we must be also doing a lot right, that works for them as people. I sure know we did today.

Olive woke up and had a smile on her face from that moment on. She was so excited about her approaching birthday that for the last few days she has been singing herself Happy Birthday and then clapping and yelling, 'Yaaaay!! My birfday!!'. She got a new easel for her birthday which was a hit with all the kids,  especially the chalk for the blackboard which apparently makes a good snack. We also gave her a new pink wagon, which was also a hit...until the big kids bowled Pop over with it while he was holding Olive. Whoops!

I spent the day doing her cake, which she had requested as 'two' and a 'pink one'. So that's what she got, a long with far too many sprinkles and lollies. We had a few meltdowns when she was told to wait for Grandma, pop and her aunties before she could eat it!
When we all sang her happy birthday, she grinned the entire song and mouthed along the words of Happy Birthday...to Olive.
My girl was thoroughly spoilt with gifts, attention, cuddles, kisses and love. You could see the pure joy on her face the whole time. It really was heart-meltingly-cute.

Two years gone since she busted into our lives with that charisma and radiant positive energy that she exudes and I wouldn't change her for the world.

Happy birthday my sweet Olive. xoxo

This blog is for Olive and while this post isn't directly about Olive, I wanted to post something about some people who are very important in her life. Her older siblings, Jaxon and Meisha. My big kids have been AMAZING since we had Olive. And not just cliché amazing, REAL amazing. I am so proud of the people they are - they are so accepting and comforting. They are confident and they are encouraging. I couldn't have asked for better people for Oli to look up to. Truly.

Jaxon is my 8 year old, as most people know. He is the most sensitive and caring wee boy I have ever met. He has an intuition when it comes to peoples feeling's and he is very good at being supportive and compassionate to people without being prompted. He likes to make people feel special, and when he does, he has this beautiful coy smile that he treats you with. Out of all of my babies, he was the biggest laugher. From a very young age, he would make us laugh with his infectious belly laugh and he still does. You can't help chuckling as well when you hear him chortling away.

Jax is a quiet boy a lot of the time and people mistake him for being shy. He is actually very confident. He doesn't think much of getting in front of an audience and performing. In fact, I think he quite thrives on it. At my mother in law's 60th birthday recently, they had a microphone for people to stand up and say something. Jax insisted on standing up there, in front of a room full of adults he barely knew, and he wished his Grandma a happy birthday. That kind of stuff? That makes my heart just beam with pride.

Jax is never slow to helping me with Olive and he takes good care of her when they play together. He has a good dose of common sense for a boy of his age and will not hesitate to call me if he feels there is any type of danger. He loves laughing at Olive and getting her to do silly things and make her laugh. He doesn't care if things are girly or pink, if it keeps his sister happy, he will do it.

Meisha, on the other hand, he is not quite so happy to help! lol. They are just 20 months apart in age so there is more sibling rivalry there. They are thick as thieves sometimes, and other times are at each other's throats.

She comes across as a shy quiet girl as well, and is actually a lot more shy than Jaxon. She has a wicked sense of humour and can be very clever in some of the pranks she has played on me (like locking me outside in my knickers and bra one morning while she stood there laughing her little head off!)!

My Meisha is a very competent child, she is excelling in her gymnastics class and she enjoys doing things that make her feel strong - climbing, running, lifting things etc. She obviously gets that from Eddie, not me!

Meisha also loves maths. A maths problem excites her and she loves being challenged into figuring out new ones. Meisha struggles a bit more with her reading, where Jax excels with his so often he will sit with her while I am busy doing dinner (or some other necessary but boring task) and help her with her reading. That is a delightful sight to a mother's eyes.

Meishy-moo is a beautiful girl (yes yes, all the looks from me haha!) and is often told so. She has gorgeous dark eyelashes with naturally blonded hair, and coupled with her lovely skin tone and her charming features, she really is a beauty.

Both Jaxon and Meisha have never moaned about Olive taking up time, or about Olive being different and having any different attention or treatment from anyone. They have always been on this road with us - enjoying the good times, knowing the sad times, and always always ALWAYS being right there for Olive. In every way.

I am so proud of my children. They truly are my biggest achievement. All three of them. Not only are they all stunners (haha, biased mother!) but  I am so pleased with the people they are already, and the more they blossom every day.

Olive climbed up the chair and plonked herself on it, wrapping her blankie over her legs.
"No babe, hop into bed please". I told her.
"No", she said defiantly.
"Why not?" I asked (stupid me!).
"Coz, Mum. Just beee-coz. Ok?"

Good lord, this child has attitude! No idea of the consequences of her actions just yet, but quite determined to not do anything that doesn't suit her.

She has become almost obsessed with a lovely soft blanket that a good friend of mine gave her for her first birthday. Since she got it last year, I've always had it on her bed as it is so nice and soft, I thought it would feel lovely on her skin. Just the last few weeks, she has insisted it goes everywhere with her. She has to have her 'bankley' when she snuggles on the couch, or when she comes in our bed, or when we go in the car, and today she was dragging it around outside while she watched her Daddy mow the lawns.
She got grass clippings and dirt all over it, so I chucked it in the washing machine. She kept trying to get it out, crying "bankleeeey! bankleeeeey!" and when it was finally done, I hung it in the sun to dry. It would have only taken 15 minutes but she spent every second of it, trying to tug it off the clothes line.
So I cut it in half. Bearing in mind, it was the size of a single bed blanket, she now has 2 decent cot sized "bankleys", so she can leave one on her bed and one can go everywhere.
Ahhhh, genius!

So tonight she had her "bankley" and Taylor Teddy (a teddy she acquired from her Aunty last week and has also grown a fondness for) in my bed and her teeny toes were poking out from beneath her blankey.
"Mummy! Look! Dat toe is sneaky!"
Hahaha, I love this kid!

After her sneaky toe had been poked back in, I told her to turn over (she has also taken to removing her pyjama top so she can feel the blanket on her skin..so sweet!) and I would tickle her back. She obediently did so, and I started tickling. After a few minutes, her breathing slowed and got deeper and she was lying perfectly still so I figured she was almost asleep. Then suddenly she throws herself over, grins and says "tanks Mummy!".

I could record so many conversations with Olive. She surprises us every day. She speaks in full sentences and it is very rare that you would have to ask her to repeat herself. She is a very bright wee button, who is also very capable. She loves climbing and doing anything the big kids are doing. She can lift herself on the rings and takes herself down the slide. I love seeing how more and more confident she gets each day.

She turns 2 in 2 weeks. A whole 2 years since this little tornado came bursting into our lives. She has had a lot of attention since the article came out in the paper, and it is fantastic. We have managed to find 2 new people with CMN through the article which is just so great! We are planning a CMN get-together in Rotorua in April, for NZ families which we are super excited for. Another great step in linking us all together.
And so far, we have raised over $3000 towards our Olive's Chance fundraiser. This is incredible!! Absolutely astounding how generous everyone has been. Thank you all.

For more details or to donate, you can go to: https://www.givealittle.co.nz/cause/oliveschance

Love, love, love

This is just a short post for today, as I mainly wanted to post a link to the article we did. We are so overwhelmed right now. The support and encouragement from people is incredible. Absolutely amazing. We are over halfway to our goal of $5000 to help with the trip to Australia (we hope to save $5000 as well). Today has been such a high, with donations coming in thick and fast and messages from people sending their love and support. We have had a message from another AUCKLAND nevus Mum - hooray!! Just what we are wanting. To connect with others in the same boat as us.
I was so afraid of doing the fundraising, because of my own insecurities, but I am so glad we took that big step and threw ourselves into all of this. The positive attention coming our way is so humbling and we are so proud that there are such wonderful people not just in our lives, but in the world. All of this, for my wee angel girl, who has no idea....

Thank you, to everyone, from the bottom of our hearts for making this dream come true for our little family.

(You can read the article here: http://www.stuff.co.nz/national/health/9820680/Family-seeks-help-for-tot).

If anyone wants to donate to Olive's Chance, you can do so at:

https://www.givealittle.co.nz/cause/oliveschance